| ibd-amsterdamumc.nl | Amsterdam UMC | The website includes information about patient care, staff, research, and departments within the Amsterdam UMC. The website provides updates on relevant research findings, such as the outcome of the COSTA and ACCURE trials, and addresses topics like medication side effects and nutrition. A key component is the information regarding the IBD-day Amsterdam 2025, an event organized by the Amsterdam UMC and Crohn & Colitis NL. | Hospital & Acute Services → Hospitals 735 | patient care 34 department 269 staff 3405 research 8967 treatment 21203 | North-Holland → Amsterdam 41253 |
| vasculitis.nl | Vasculitis Stichting | The website covers various forms of vasculitis, including ANCA vasculitis, large vessel vasculitis, and other rare vasculitides. Information is provided on diagnosis, medication, consequences, and the effects of the disease, as well as the effects of medications. The foundation maintains collaborations with various experts, research centers and hospitals, such as the UMC Amsterdam and the Maasstad Rotterdam. | Social Organization → Patient Organizations 259 | organ 633 medication 1164 patient 4082 research 8967 | |
| nvsp.nl | NVSP | The website contains extensive information about Sjögren’s disease and non-Sjögren sicca, including diagnosis, symptoms, treatment, and disease presentation. Various interactive tools, such as a health scan, and information brochures are available in Dutch and English. The website offers opportunities for peer support, through peer contact, Facebook groups, podcasts, videos, and regional meetings. | Nutrition → Dietetics 816 | peers 89 treatment 21203 event 45199 | Westerkwartier → Zevenhuizen 460 |
| glutenscreen.nl | Glutenscreen | The Glutenscreen research in the Kennemerland region has been completed, and consultation offices have incorporated the detection of celiac disease in young children into their standard care. Celiac disease is an autoimmune disease triggered by gluten, leading to inflammation of the intestinal lining and reduced nutrient absorption. The treatment of celiac disease involves a lifelong gluten-free diet, aiming to improve the health and quality of life of patients. | Medical Care & Services → Pediatric & Child Health 2121 | celiac disease 12 gluten 20 diet 747 research 8967 child 11566 | North-Holland → Kennemerland 242 |
| irisverstappen.nl | Iris | RouwKracht urns are designed to symbolize emotions surrounding loss and provide a place to store memories. Chewaway originated from the common request for chewing gum as a way to remember others, with a silver gum available. The website also addresses Systemic Lupus Erythematosus (SLE), where patients often face misunderstanding due to the illness's invisible nature. | Disease & Treatment → Chronic Diseases 1168 | urn 411 | |
| lupuspatientengroep.nl | Lupus Nederland | The organization aims to support its members by collecting information, providing education, and promoting peer support. Recent activity has decreased due to a shortage of volunteers on the board. The organization will be dissolved as of January 1, 2017, due to the lack of board members. | Social Organization → Patient Organizations 259 | forum 1362 member 10154 | |
| jongerenmetsjogren.nl | LevenMetSjogren.nl | The website offers information about Sjögren's disease, an autoimmune rheumatic system disease that can occur at any age and is found worldwide. Users can utilize the forum and social media, read current healthcare news, and participate in giveaways. The website also provides the opportunity to ask medical questions to doctors and find links to international associations. | Body & Movement → Rheumatology 44 | giveaway 47 forum 1362 news 15293 | |
| mestcelactivatiesyndroom.nl | Mast Cell Activation Syndrome | The website offers online courses, a knowledge base with e-books, and free downloads covering topics related to MCAS and histamine intolerance. Comprehensive guides are available on mold illness and mycotoxins, copper balance, oxalate and salicylate, estrogen dominance, and the balance between GABA and glutamate. The website also includes a cookbook with histamine-free recipes and an MCAS program designed to calm mast cells and reduce histamine. | Supplements → Immune System 36 | knowledge base 569 recipe 5142 course 14728 | |
| kimooms.nl | Kim Ooms | Kim Ooms has developed a method called B.E.T.E.R. to help women with autoimmune diseases feel better. The website offers a free video series and a ‘Trigger Check’ live, and contains information about the B.E.T.E.R. method and a ‘Method B.E.T.E.R. – Child’ program. The website specifically focuses on women with autoimmune diseases, unexplained complaints such as irritable bowel syndrome, thyroid complaints and other health issues. | | autoimmune disease 11 mindset 782 nutrition 4935 complaint 6479 | |
| ibd-zorg.nl | IBD-Zorg | The collaboration in the Southwest Netherlands region involves coordinating care across various hospitals. The website offers patient information about diagnostics, treatment, and medication related to Crohn's disease and ulcerative colitis, including animations available in multiple languages. Patients experiencing symptoms suggestive of these diseases can be referred to a network of participating hospitals for diagnosis and treatment, resulting in a multi-expert opinion. | | diagnosis 1490 patient 4082 network 11123 collaboration 16036 treatment 21203 | Utrecht → Southwest 247 |
| lupusnederland.nl | Lupusnederland | The website describes Lupus Erythematodes as a chronic autoimmune disease that can manifest in various ways. It explains the three different forms of Lupus: cutaneous lupus erythematosus (CLE), systemic lupus erythematosus (SLE), and drug-induced lupus erythematosus (DILE). The website emphasizes that the exact cause of Lupus is still unknown and likely involves a combination of factors such as genetics, infections, stress, and hormonal changes. | | symptoms 558 skin 2518 treatment 21203 | |
| eldadorren.nl | Elda Dorren | Elda Dorren is a life coach specializing in coaching for IBD, crises, life questions and autoimmune diseases such as Crohn's and colitis ulcerosa. Her approach is holistic and aimed at restoring balance in the body with chronic complaints and stress, with the goal of happiness and health. The website provides information about her book ‘Embrace Your Gut’, her coaching approach, and her offerings of workshops and training.” | Anatomy & Systems → Gastroenterology 25 | gut 152 body 3490 stress 3965 book 11396 workshop 19325 coach 25810 | Netherlands → South-Holland 92382 |
| metmsenvork.nl | with MS and fork | The protocol combines elements of the paleo and ketogenic diets, emphasizing the role of fats, gut health, and movement in treating MS. The website offers a wide selection of paleo recipes, including bread, dressings, sauces, soups, salads, and desserts. In addition to recipes, the site contains information on various aspects of health and lifestyle, such as fasting, the Wim Hof Method, the influence of fats, and longevity. | Neurology → Multiple Sclerosis 64 | ms 55 diet 747 nutrition 4935 recipe 5142 health 6366 | |
| bouncebackbalance.nl | PUUR ZIJN | The author describes how an insect bite in Spain led to various symptoms, including a swollen earlobe, painful hands and legs, and a reduced salsa dancing ability. After a long medical journey, the author came into contact with Erna Nijenhuis from PUUR ZIJN, who prescribed lymph-cleansing capsules, allowing the author to start cycling and walking again. The capsules were no longer available, leading to panic in the author. Subsequent research was done into the function of the lymphatic system and the role of lymphocytes in cleansing the body. | | lymphatic system 19 capsule 209 symptoms 558 | |
| histamine-intolerantie.nl | Histamine Arm | The website addresses symptoms of histamine intolerance and MCAS, including fatigue, abdominal pain, itching, anxiety, and headaches, suggesting a high histamine level as a possible cause. It offers information on related issues such as biogenic amines, genetics and histamine, as well as practical guides on detoxifying aluminum and copper, and addressing mold illnesses. The site also provides information on hormonal imbalances, such as estrogen dominance, and the role of glutamate and GABA, and contains recipes and e-books aimed at an anti-histamine lifestyle and recovery of the body. | Supplements → Immune System 36 | symptoms 558 guide 1364 nutrition 4935 recipe 5142 | |
| ziektevangraves-basedow.nl | N.V. [no mention on the page] | The website covers the causes, symptoms, diagnosis, treatment methods (such as block and replace, titration, surgery, and radioactive iodine), and risks related to Graves' disease/Basedow's disease. Information is provided about the thyroid gland itself, including how it functions, the location of the thyroid, and possible nodules, as well as treatments for these. The website also contains articles on related topics, such as nutrition, vitamins, blood values, stress management, and experiences with the disease, and warnings about radioactive iodine. | | thyroid 28 treatment 21203 | |
| bloedzerieus.nl | Bloedzerieus | Vasculitis is a rare and serious autoimmune disease often unknown to the general public, as exemplified by the author's personal experience. The Bloedzerieus foundation organizes actions to increase awareness of vasculitis and provide resources for research. In addition to the information platform and sales channel, the website also promotes the organization of a triathlon in Midden Drenthe to generate extra attention and funds. | Hospital & Acute Services → Hospitals 735 | action 384 webshop 8648 research 8967 blog 13392 | Drenthe → Midden-Drenthe 1343 |
| kokenmethashimoto.nl | Jonne | The website features gluten-free, dairy-free, soy-free, sugar-free, and alcohol-free recipes. Jonne, the owner, offers guidance, workshops, and personal experiences with Hashimoto's and diets. The site focuses on learning about food intolerances, adapting the diet, and finding a sustainable eating approach. | Nutrition → Special Diets 20 | diet 747 recipe 5142 energy 9075 | |
| verdermetms.nl | verdermetms.nl | Multiple Sclerosis (MS) is a chronic disease that affects the central nervous system, resulting in the destruction of myelin and neuronaxons. The symptoms of MS vary greatly and can include changes in sensation, visual problems, muscle weakness, and fatigue. MS is more common in women than in men, and often begins between the ages of 20 and 40, although it can occur at any age. | | multiple sclerosis 39 symptoms 558 risk 2896 | |
| praktijklottebos.nl | Praktijk Lotte Bos | The website describes the daily challenges faced by people with chronic conditions, such as fatigue, pain, and digestive problems. It presents programs designed for people with auto-immune diseases or chronic conditions, with the goal of supporting their bodies with the right nutrition and lifestyle. The program is based on three pillars: low-carbohydrate, high-protein, and free from inflammatory substances, and offers benefits such as more energy, improved digestion, and fewer complaints. | Nutrition → Diets 951 | autoimmune disease 11 immune system 269 lifestyle 2918 nutrition 4935 complaint 6479 energy 9075 | |
| reumatologievandaag.nl | BPM Medica | The website/publication provides information about Sjögren’s disease, a rheumatic auto-immune disease characterized by inflammation of moisture-secreting glands. It describes the ‘patient journey’ – the journey from diagnosis to treatment – using research conducted by Ipsos on behalf of Novartis. The publication aims to help doctors recognize the disease better and improve treatment. | Body & Movement → Rheumatology 44 | rheumatology 12 journey 701 research 8967 treatment 21203 | |
| yvvsms.nl | yvvsms.nl | The author, a 37-year-old woman from Elten, Germany, received an MS diagnosis (RRMS) after her father was also diagnosed with the disease. She describes her emotional reaction to the diagnosis, her desire to continue living life to the fullest, and her fears of limitations. The website is a blog where she shares her experiences, challenges, and hopes for recovery, and asks for support. | Personal → Personal Stories 1027 | ms 55 son 71 energy 9075 | Gelderland → Arnhem 8680 |
| cno-scch.nl | CNO-SCCH | The association offers insights into diagnostics and treatment and strives to keep patients informed of the latest developments. Experiences of patients and professionals are shared to promote peer support and provide practical advice. The website provides information about the Expert Council, news, a magazine, and other resources for patients and professionals. | Social Organization → Patient Organizations 259 | diagnosis 1490 association 8562 treatment 21203 | |
| gewoonmira.nl | Gewoon Mira Transformatiecoach | The website addresses the owner’s personal experiences with auto-immune diseases, fatigue, and hair loss, offering understanding to visitors. The website provides information and tips on nutrition and lifestyle, focused on helping visitors regain control of their symptoms. A listening ear is offered, with personal insights shared, in the hope that visitors experience more energy and happiness. | Dermatology → Hair Problems 76 | alopecia 19 lifestyle 2918 nutrition 4935 | |
| dairegistry.nl | DAiRE | The website discusses the topic of creatine and its effects on muscle performance and muscle growth, emphasizing the scientifically proven effects and safety. The article describes what creatine is, how it works in the body, and why it is popular among amateur and professional athletes. The text highlights that creatine is not a banned substance and therefore is a widely used dietary supplement worldwide. | Nutrition → Diets 951 | autoimmune disease 11 creatine 58 muscle 498 | |
| claireboon.nl | Claire Boon | Claire Boon offers consultations, recipes, and blog posts, focused on improving health through nutrition and lifestyle. She shares her personal experiences with auto-immune conditions such as Alopecia Universalis and Hashimoto, and describes how she has gradually adapted her lifestyle to reduce her symptoms. As an orthomolecular nutritionist and hormone factor coach, she helps clients overcome their ailments by focusing on a healthy microbiome, the omega-6/omega-3 ratio, and sufficient vitamin D. | Nutrition → Orthomolecular Nutrition 224 | vitamin d 38 lifestyle 2918 nutrition 4935 | Zaanstad → Zaandam 2740 |
| jokegoudriaan.nl | jokegoudriaan.nl | Joke describes her struggles with a low Hb level and the ensuing consultations with various doctors. She shares her experience with starting an immunosuppressant to protect her red blood cells, and the side effects that came with it, including shingles. Joke recounts her unexpected infection with shingles during a vacation in France, the pain relievers she used, and the discontinuation of the immunosuppressant. She also describes her recovery via an intravenous infusion and the consequences of COVID-19. | | shingle 43 covid-19 102 | |
| louisedelange.nl | LouiseDeLange | After receiving an MS diagnosis in 2012, Louise De Lange refused to accept the pessimistic outlook presented by a specialist and embarked on her own research into potential MS cures. During her research, she discovered connections between MS and other autoimmune diseases and neurological disorders, gaining information from specialists, scientists, and the pharmaceutical industry. The book contains 224 pages and provides readers with information and tools to actively engage with the disease. | Neurology → Multiple Sclerosis 64 | autoimmune disease 11 cure 20 ms 55 research 8967 book 11396 | |
| ziektevancrohnsymptomen.nl | ziektevancrohnsymptomen.nl | The website focuses on providing medical information about Crohn’s Disease and related symptoms. Personal experiences and stories of people with the disease are shared to provide insight into how to cope with it. The website also offers general facts and tips about Crohn’s Disease, as well as nutrition advice and a self-test. | | testing 456 symptoms 558 nutrition 4935 treatment 21203 | |
| yvonnewijtten.nl | Yvonne Wijtten | The website describes autoimmune diseases as stemming from self-judgment, suppressed emotions, and stress, and offers an approach that focuses on restoring one’s own wholeness and strength. The content addresses the impact of autoimmune diseases on a person’s life and relationships, including feelings of dependence, worthlessness, anxiety, and loneliness. The website encourages stopping symptom management and emphasizes the role of psychological pain and emotional patterns in the origin of autoimmune diseases, and the need for a holistic approach. | Mental & Emotional Well-Being → Trauma 1001 | autoimmune disease 11 self-help 52 emotion 2169 stress 3965 relationship 4205 coach 25810 | |
| maagoperaties.nl | Dynamik-Gen | The website is based on the author's personal experience with a weight loss surgery undergone in February 2013. It compiles and presents information about the preparatory process, the surgery itself, post-operative care, and various aspects such as screening days and comorbidities. A forum is included, linked to a Gastric Bypass forum, where users can share their experiences. | Surgery → Bariatric Surgery 14 | forum 1362 | |